Thursday, January 25, 2024

History of Our Group

Our group was conceived in 2006 by Jodie Stewart, who originally named it FMGC (Fibromyalgia Group of Gloucester County). Jodie had an intense flare up of her fibromyalgia symptoms and said that, "I decided that when I got better, I was gonna start a group and give back." She added that, "You feel alone, and I wanted to provide a place where people could relate to each other. It's so important to have people you can relate to." She also commented, It's really tough with an invisible disease, so I tried to help put people's minds at ease."

Jodie began holding meetings at Kennedy Hospital in Washington Township and explained, "We don't complain. We vent to each other." She recalled that, "My main objective was to help others. People told me the group was life changing; people who were considering suicide changed their minds."

If she could pass any of her experience and wisdom to the fibromyalgia community she said she'd impart, "People need to find what helps them find peace and some joy. Music is my passion and feeds my soul."  Jodie enjoys all forms of entertainment including music and movies. 

Further reflecting on her tenure as the leader of our group she shared that, "I think helping others is more rewarding than people could ever imagine. [For me] It was more rewarding than I could have ever imagined."

Heather Crossin attended meetings led by Jodie for 2 years, and the two became close. Heather explained that when Jodie's daughter was preparing to go to college, Jodie found it to be too much to run the meetings and assist her daughter, and at this point in 2010, Jodie decided to resign from her role.

Heather took over managing the group and recounted, "I felt like it was worthwhile to continue. I couldn't see the community losing the group." She changed our group's name to South Jersey Connections and helped countless individuals. 

Heather led our meetings for six years at the Camden County library in the Echelon section of Voorhees, NJ. She was hosting at Kennedy Hospital as well at first. Eventually, this became too much for her, and she began holding the monthly meetings just at the Voorhees library, which was much closer to her home. 

Heather lives with severe fibromyalgia and chronic fatigue syndrome and was a  dedicated and devoted advocate for our community. She enjoys reading and finds Zen Buddhism helpful in coping with her condition. One of her primary messages to group members was always "Focus on what you can do!"

Heather Crossin decided to step away from conducting group activities in 2016. Soon after this occurred, a group member asked Jay if he would consider taking over Heather's role, and he accepted the opportunity. Jay said he took up this mantle because, "I want to be as helpful as I possibly can to our community and to people in general. He continued, "I find helping others helps me a lot too. I find it ironic that helping others makes me feel happy and at peace, but it does."

Years before, Heather hosted the first support group meeting that Jay ever attended, and he felt tremendously grateful to have the opportunity to meet others like himself. He believed that if there were no local group to provide this service, it would have been a bleak, harsh, and isolating reality. Therefore, Jay decided that he wanted to be there for others in the way that Heather had been there for him when he first showed up for validation and support.

In 2016 Jay began hosting meetings on a bi monthly basis at the library in Echelon. This library is actually within walking distance from where Jay grew up. During this time, he has provided much needed support for many, and he has found the effort to be very fulfilling. Jay details that some of the most helpful aspects of his pain management program are, "Pacing everything, finding ways to laugh, dwelling in the positive/joyous moments, counting blessings, and finding little ways to help others."

Jay Steele has been a professional recording artist for over 25 years. He released a song called What I Can Do, dedicated to those with fibromyalgia, on his album For Tha Love. He also released a song called Musical Soup for tha Soul (Ways 2 Cope), with lyrics detailing various coping strategies, on his album A Refreshing Contribution.

The group was on hiatus from March of 2020 until September 2022 because of the Covid 19 pandemic. During this time, the library was shuttered for an extensive period of time.

Heather has since bought an RV and embarked on a journey around the U.S. with her husband Chris. Her and Jay still keep in touch and have a bond like family members do; because not only have they spent many hours in meetings and group related social events together, but they are like a family - a fibromyalgia family. They understand each other in ways that virtually no one outside their community of people with invisible disabilities can. 


Ground Rules for Meetings & Counseling Training

 1. Participants of meetings will refrain from judging one another. Our purpose is to support one another and benefit from educational resources.


2. Participants will be attentive to who is speaking and refrain from private conversations during the meeting. One person will speak at a time and others will not interrupt.


3. Participants will not pressure others to discuss feelings or experiences.


No cross-talk means that when a person shares at a meeting, the group’s job is to be totally silent and give that person their undivided attention.

A person is to be allowed to share without editorial quips, one-liners, or interruptions from others, including advice or comments that are intended to help. It’s also cross-talk when anyone judges, preaches, interrogates, debates, or criticizes about what someone else has shared, regardless of whether they’re doing so during their own share time.

The only time someone may be interrupted during sharing is if the chairperson or a senior group member feels that these guidelines are being ignored to the extent that group safety and harmony are at risk. This also includes asking people to “wrap up” when they monopolize share time.

* Please do not wear excessive perfume or other products that have strong smells on the day of the meeting, because some of us are very sensitive to smells and it can make it hard for us to endure


COUNSELING TRAINING
(from a suicide and crisis prevention service Jay Steele volunteered with)

Things to Keep in Mind
- Our job is not to fix the problem. Listen and empathize 
- Empathy is climbing down into the hole with them and feeling their burden and seeing it 
  with their eyes
- Focusing too much on solutions can be alienating to them


What to say (to empathize effectively
- "It must be really hard to deal with that"
- "It must be incredibly difficult to have to deal with that"
- "It must be extremely (frustrating, painful, depressing, upsetting, etc.) to deal with _____"
- "I can't imagine what that must be like"
-  Don't robotic and keep saying the same exact words!

Exploring Coping Techniques
- No giving advice!
- No "you should"! No "Why don't you just (do this or that)" !
- Really listen and let them lead the way with ideas on how to cope with questions like this:
- "What has helped you feel better?"
- "How you deal with ______?"
- "Have you thought about trying __________ to deal with ________ ?"
- "How do you think it would go if you tried ____________?"
- "Is there something you've thought about trying but haven't tried yet?

Laughter: Maybe the Best Form of Medicine

😄💜

Humor changes brain chemistry, releasing endorphins that increase our sense of well-being, improve our reasoning, and make us less sensitive to pain.

Laughter is a proven stress reducer. A good belly laugh both requires and improves deeper breathing and reduces muscle tension.

People who have joy in their lives are more likely to feel good about themselves. It also seems fairly obvious that having a sense of humor helps one cope with life's stressors and crises.

Humor can ultimately be used as a coping tool for almost any difficulty because it engages an increase in depth of breathing that relaxes, refreshes, and restores.

Humor makes life fun. Laughter is a primary release mechanism from tension. When ridiculousness' occurs and our breath releases, we can more readily see the beauty, joy, wittiness or intelligence and better accept unfamiliar or too familiar forms.

Breathing and humor can be a safety valve for the healthy release and expression of anger and other strong feelings and emotions.

Humor is mentally and physically good for everyone offering perspective and balance while providing temporary relief from the world's restrictive regulations.

Humor is a means of communication and creative expression. Humor affirms life and brings people together.

Humor is a way to express the truth even when the truth is feared. Humor is very beneficial in strengthening relationships.

It gives one a special perspective and sense of power. Humor also dispels anger and aggression and relieves tension.Those of us that learn to find humor even in some of the grim realities and emotion-packed challenges of daily life have an edge on peace of mind.

Notice what happens with your breathing after you laugh a lot.

Your breathing slows down and becomes fuller and deeper. Your voice becomes more resonant